Monday, August 18, 2008

Through The Muddle

Friends. Friends are dragging me through my muddle. Through the mess that used to be my brain. This weekend Keith picked me up and dragged me and my IV into his car and drove me to Carpinteria and Karen dragged me back home a couple days later. I'm feeling like there is a Zombie quality about me these days as friends do their best to act like I'm their normal friend, Trish, who used to laugh and swim and lick Foster's Freeze and plan fun things to do on the weekend. Maybe it's just me feeling funny from the inside and no one can really tell that the Trish of old is falling off her skateboard these days and can't seem to find her usual center balance. I tried to act normal in Carpinteria. Even ate a couple bites of bok choy. That seemed pretty normal. Took a couple of walks on the beach. Actually talked while I walked. Not an easy feat for someone losing their balance. Someone not sure just whom exactly they are right at this moment.

But this could be a big week.

This morning I went to see Dr. Sandler. He's a psychiatrist who deals in medications. I could not believe that I actually drove to Century city at 8:30 in the morning but I did it, blurry eyes and all. I told him my story. He agreed that it did seem like the medication I am on is affecting my power to think clearly. And he really thinks I should be swimming. I loved him for saying that. Jumping into a pool sounds so right to me but I'm not doing that now because of the patches. I see Dr. Shaum on Wednesday and I must talk to her about the patches and do I still need as many as I'm taking and what about the pool? And then she will tell me what treatment we're going to try next. Radiation? Some pill. Anything is fine with me as long as we're treating. I'm falling apart here and since I haven't been able to move forward since she left on her vacation I seem to have fallen deeper and deeper into this dark hole I'm in at the moment.

"YES, IT'S VERY DARK DOWN HERE............."

A wonderful man died the other day. Leon. Myrna's father. His time had come. I really liked Leon. A lot. He made me soup. We talked. We joked. He was a really good person and I, along with many others, will miss him dearly. I won't be able to go to Leon's service because it is at the same time as my appointment with Dr. Shaum and I can't seem to change it to a better time but I will be there in spirit. And as I have found out since my dad died four years ago, these guys are with you forever, popping up at strange times, sometimes just to say hello, sometimes just to make you laugh or think about an interesting moment you had together. Eaating soup. Borscht. My favorite. Life is cool that way. It all stays alive in your brain.

And speaking of my brain...I want it back! And I am aiming in that direction as I try to wein myself from these evil patches. Walking around impersonating someone else is exhausting. It was much easier just being me. Even if things weren't going so well I at least knew I was me and my brain and my body could figure out how to deal with things together and it wasn't that difficult. Like someone leaves you after 24 years of marriage so you figure out what to do with that information. You write, you swim, you talk to your friends...You deal. but when your brain isn't part of your body you have no idea what to do so you wake up in a state of complete anxiety and fear and you wake up very slowly and you try and figure out how to get dressed and if you should get dressed at all and you realize you can't swallow vitamins anymore or take Sam-E which always helped with the tiny bits of anxiety one might get on a tough day and worst of all you can't exercise and you lay in bed not knowing who you are and what is going to get you up and out and into the world where you're supposed to be. With all the other people getting on with their day.

I guess it was good I finally went to Carpinteria. It wasn't what I thought it would be because I'm not who I am...Yet. I will be her...Trish. I will be her again, won't I? She's in here, I just know that.

I caught a glimpse of the beach that I love. A glimpse. I know there's more. I'm going to go back when I can feel it all...The air, the sand, the people.................Me. Go back when I can feel me again. If you find me before I find me...............Would you let me know where I've gone.

I must get by with a little help from my friends.

Right?

7 comments:

JS said...

T,

Shot you an email but I'll leave it here as well. Discovered this site this summer -and their product allowed me to swim with a cast on! Should work for you, too. A vacuum sealed cover over the pain patch.

www.drycorp.com
check it out.

Big love to you,
June

Anne said...

Hi Trish:
I know you are worried about taking off the patch to go swimming, but there are products made (occlusive dressings) that can be placed over the patch (es) while swimming,showering, etc.

Also, I think you will find that the more activity you get with swimming, your "endorfins" will kick in and you will be able to reduce the amount of patches/pain meds you take.

Good Luck on Wednesday with Doc S. I would mention your ongoing axiety while waiting for her to get back from vacation and leaving you on tenderhooks....but that's just me...what I would do.

Take care,
Anne

Anne said...

Hi Trish:
I know you are worried about taking off the patch to go swimming, but there are products made (occlusive dressings) that can be placed over the patch (es) while swimming,showering, etc.

Also, I think you will find that the more activity you get with swimming, your "endorfins" will kick in and you will be able to reduce the amount of patches/pain meds you take.

Good Luck on Wednesday with Doc S. I would mention your ongoing axiety while waiting for her to get back from vacation and leaving you on tenderhooks....but that's just me...what I would do.

Take care,
Anne

W.E.B. said...

Dear Patty,

It's your son. Shhhhhh -- don't tell anyone. Sorry I haven't called in a few days -- I've been hiding and hibernating during my few days off from work. I just started a blog. I can't believe it. You'll probably have to call me tomorrow to keep me from erasing it. Check it out, though.

I love you,
Will

Barbara said...

I'm thinking of you today and hope it goes well. Love, Barbara

Sister Mary Martha said...

Just wanted to hi to you and lo and behold I can say hi to Will too! Hi Will!

So glad you finally get to see Dr. Schaum today. It's too late to tell you to say hi to her for me...not that you could remember LOL. She was my oncologist, too. Hope she got a tan...

You'll have a beautiful tan yourself before long.

Lyla said...

Holding good thoughts for you with Dr. Schaum today...